A very big welcome to our second edition of Neurodigest: a community centric neurology focused journal. Download a full PDF of this issue here. Our mission is to seek out excellent care wherever we find it and disseminate this to our expanding readership. This has never been more important. Another 5 years of Conservative government is likely to see acceleration of commissioning, giving stakeholders a unique opportunity to influence and shape their future local service.
CCG’s (clinical commissioning groups) need to be mindful of their patients’ needs before designing a service. Pam Enderby shares her “8 levels of care tool”. This specifically helps to indentify patient’s requirements; an important step in ensuring services are “fit for purpose.”
Headache is of course the number 1 reason for referral to secondary care and is thus a low lying fruit ripe for picking. Keith Redhead has kindly shared with us the West Norfolk Pilot Pathway for managing headache in the community – a path I am sure many CCG’s will be looking to go down.
We are indebted to Paul Morrish and Alex Massey for highlighting the level of pre-existing Neurology provision across England. It is no surprise to see the word “inequality” coming up time and again. Hopefully the next few years will see his map turning a more homogeneous colour and these “invisible” patients becoming more opaque.
The old days of patients with chronic neurological disease, taking their place every 6 months in the local DGH to see their Consultant are hopefully numbered. Ruth Glew and Ken Dawson outline how they have set up a patient centred, multidisciplinary, integrated network for patients with Motor Neuron Disease in SE Wales.
Neurodigest is also very grateful to Nigel Williams for providing an “easy to digest” view on the topic of Epigenetics. Greater understanding of how to answer the “Why me?” question patients often pose is knowledge we can all benefit from.
Patient stories are always illuminating particularly to those of us who refer our patients to support services such as Neurorehabilitation. Julian Harriss demonstrates how a specialist multidisciplinary approach applied to a patient with traumatic brain injury can lead to dramatic, life enhancing improvement.
Management of Parkinson’s disease can become a difficult balance as motor complications arise. Ray Chaudhuri guides us through the treatment options available to help patients though the first hour or two of the day.
Finally we report back from several Neuroscience Strategic Clinical Networks who have been kind enough to update us on their progress in reshaping the delivery of local care across the country.
We very much hope you enjoy this second issue of Neurodigest.
Should you wish to offer your thoughts/comments on any of the subjects being aired, or you would like to contribute to a future issue, please get in touch with the Publisher Rachael Hansford.